The highlights are that she has maintained her laid back demeanor, which we are very grateful for. No uncontrollable crying and actually very little crying at all. Her days and nights were a little mixed up at first, but we seem to have gotten that straightened out.
More of this...
...than this
Mostly, we are very happy to say that we have not had to use her g-button for the last two-weeks. She has been taking all of her feedings by bottle. At first, we were trying to keep the every-four-hour schedule they used at the hospital but it seemed to be too much for her take at once. So after her first checkup we decided to just feed her when she seemed hungry and track it to make sure she was eating enough. Since then she has been doing really well. And lately she has gotten to where she sleeps more during the night and then catches up on eating during the day, which is really nice.
When she left the hospital she was 8 lbs, 3 oz. A week later at her pediatrician appointment she had only gained an ounce and a half, but then two days later at her follow-up with the surgeon they said she was 8 lbs 14 oz. So it seems the three scales weren't exactly synced up.
Grandma came to stay with us for few days after Morgan arrived. The following week Nana came to help out for a few days and really wanted to know what Morgan weighed now. She decided she would weigh herself holding Morgan and then again without holding her. Based on that, she said Morgan was 9+ lbs, but she wouldn't let me check her math for some reason...just kidding Nana. We love you. Please come back and babysit again.
Still growing!
Morgan does tend to cough some, mostly after eating and especially if you lay her down right away. We went ahead with a swallow study last week to make sure the fundo surgery is still holding strong. It seemed fine so they think it might just be pressure against the fundo that is making her cough. They did see some aspiration when she swallows (fluid going down her trachea instead of her esophagus) but not enough to worry them. For now we continue to thicken her milk with "simply thick" gel to keep the aspiration to a minimum. She does seem to cough less as time goes by.
As we mentioned, Grandma and Nana were a tremendous help with Morgan for the first couple of weeks that Morgan has been home. However, we knew neither of them could stay forever so we had to make other childcare arrangements. Daycare was not a good option for Morgan right now because of the exposure to germs from so many people, so we found a nanny to come to the house while we both work. She has a lot of experience and seems to be really good with Morgan. Her last family had nothing but wonderful things to say about her but since the kids were both school-age now, they had to let her go.
A lady from Early Childhood Intervention came by today but they did not do an assessment yet. Shelly filled out all of the paperwork and they will return in February. They said it will be hard to tell what, if anything, she will need help with until she gets a little older. Once a few months have gone by they will be able to get a better judge on her and will guide us on anything we should be doing to help her along.
We'll try keep everyone posted on how things progress and any hurdles that she has to leap over. For now she is still finding a routine and keeping us busy.
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